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Dr. Roach: How To Handle The Diagnosis Of CREST Syndrome

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  • Dear Doctor: What Are The Risks Of Sleeping With Earbuds?

    DEAR DR. ROACH: In a recent column, you warned that sleeping with earbuds in might harm a person's ears. Can you explain how that injury would come about? I have found that listening to sleep stories or guided sleep meditations when sleep eludes me makes it possible to avoid taking medications. I thought that was a good thing, but now I don't know. -- A.P.

    ANSWER: I was concerned that if a person sleeps on their side, the earbud could put too much pressure on the ear canal and cause damage to the skin. Although I found at least one case report of this, it does not seem to be likely. Also, if you are listening at a high volume, prolonged exposure can cause hearing loss. Finally, noise-cancelling earbuds can make it harder to hear if an emergency is happening. All of these risks are probably small, though.

    DEAR DR. ROACH: I am a 76-year-old woman in good health, although I am overweight. I was recently diagnosed with CREST syndrome. I'm finding it difficult to learn more about this autoimmune disease. Very little seems to be known.

    I am particularly interested in learning how this will affect my lifestyle. I am currently in a weight-loss program, practice Tai chi once to twice a week, and attend two weekly water exercise classes designed for mobility and balance. Can you provide me with any information that I can use to research about how to handle this disease? -- R.C.V.

    ANSWER: Systemic sclerosis is an autoimmune disease that can affect multiple organs, far more than just the skin, which is what its former name, scleroderma, described. Most people with CREST syndrome have a form of systemic sclerosis called "limited cutaneous systemic sclerosis." CREST is made up of five separate issues:

    -- Calcinosis cutis, the deposition of calcium in the skin.

    -- Raynaud's phenomenon, color changes and pain in the extremities upon exposure to coldness.

    -- Esophageal dysmotility, a swallowing disorder, which might have symptoms including heartburn, pain on swallowing, or gagging/regurgitation.

    -- Sclerodactyly, the hardening of the skin, especially in the fingers, giving the hands a puffy appearance. The skin factor in people with CREST usually does not affect the body or the extremities closer to the body besides the elbows and knees.

    -- Telangiectasias, dilated blood vessels in the skin that are sometimes called "spider veins."

    Unfortunately, even the so-called "limited" form of systemic sclerosis can still involve other organs, including the heart and especially the lungs. A rheumatologist is the expert on diagnosis and treatment of the scleroderma group of diseases, although other experts can sometimes provide consultation.

    Treatment depends on the organs involved and the symptoms the person has. Although you don't note any symptoms of CREST, you might benefit from treatment of Raynaud's (and I'd caution you about even cool water exercise, which can trigger the symptoms of Raynaud's). However, if you had severe disease -- such as heart or lung disease, or progressive and severe skin disease -- your rheumatologist might recommend medications to decrease the activity of your immune system. This should be done as soon as possible once severe disease is noted, so periodic screening of the possibly affected organs is essential.

    The National Scleroderma Foundation has much more information, including information about support groups, at scleroderma.Org.

    Dr. Roach regrets that he is unable to answer individual letters, but will incorporate them in the column whenever possible. Readers may email questions to ToYourGoodHealth@med.Cornell.Edu or send mail to 628 Virginia Dr., Orlando, FL 32803.

    (c) 2022 North America Syndicate Inc.

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    National Lung Month: Doctors Warn Vs Common, Uncommon Lung Diseases

    Medical societies and patient-leaders unite for respiratory disease awareness campaign.

    Released

    MANILA, Philippines — In celebration of National Lung Month, frontrunners in the Philippine healthcare industry coalesced recently to increase public education on various lung diseases. 

    The event "Lungs Matter: Raising Awareness for Respiratory Wellness" was put up by the Philippine Alliance of Patient Organizations, Psoriasis Philippines, Philippine Society for Orphan Disorders, Scleroderma Awareness Philippines, and Philippine College of Chest Physicians (PCCP), supported by pharmaceutical company Boehringer Ingelheim (Philippines) Inc. 

    Held in The Bayleaf Hotel in Intramuros, Manila, the event was attended by esteemed healthcare experts who shared fruitful insights on popular and lesser-known respiratory diseases, and the basics of lung care. 

    "This National Lung Month is a good opportunity for us to focus the public's attention on respiratory wellness, spread more awareness on the different kinds of lung disease, and call on a collective movement to support healthier air," said Dr. Mae Campomanes, Chair for the Council on Occupational and Interstitial Lung Diseases, PCCP. 

    The "Lungs Matter: Raising Awareness for Respiratory Wellness" event took guests on various forum talks, pocket activities, and wellness exercises, such as Breathwork Practices and Shibashi — an 18-posture exercise that coordinates movement with breathing and concentration. 

    It was then followed by a meditational walk in the historic Arroceros Forest Park. Known as "Manila's last lung," the Arroceros Forest Park was a catalyst for better and healthier environment in the aim of fostering lung health. The walk was done in solidarity of all partners to focus the public's attention on respiratory wellness and to encourage participants to make a personal pledge to supporting lung health. 

    In 2022, the Department of Health (DOH) reported 300,000 cases of acute respiratory infection over the course of six months. Among the most common lung diseases known to Filipinos are:

  • Asthma, a disease of the airways in the lungs caused by inflammation;
  • Pneumonia, which happens when fluids build up in the lungs;
  • Tuberculosis (TB), a contagious disease caused by germs;
  • and Chronic Obstructive Pulmonary Disease (COPD), an inflammation that causes obstructed airflow from the lungs.
  • Other rare lung diseases that are equally important, but which are difficult to diagnose are Interstitial Lung Disease (ILD), which is a group of disorders that cause progressive scarring of lung tissue.  
  • "There's a wide range of topics for us to touch on regarding respiratory wellness. We at Boehringer Ingelheim, are committed to supporting our health organizations and medical societies to further increase disease education. We want to help push prevention and early diagnosis at the forefront so we can safeguard the health of many Filipinos," said Dr. Greta Cortez, Head of Medicine for Boehringer Ingelheim (Philippines) Inc.  

    Through the "Lungs Matter: Raising Awareness for Respiratory Wellness" event, advocates champion the patients' quality of life by putting importance on prevention and early detection.

    This educational discussion, in honor of National Lung Month, aims to inform the public about the predispositions and risks associated with common to life-threatening respiratory diseases.

    RELATED: 5 tips to help women stay healthy






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